Wednesday, April 6, 2011

April 6, 2011 11:09pm

Hailey is working really hard at therapy each day.  She's getting stronger and stronger.  She's being allowed to have a "soft food" diet now instead of a "pureed diet" and is allowed a thickened juice box which is like the consistancy of maple syrup.  She still has the feeding tube until she can take in more liquids. She's receiving pediasure to supplement her diet at night.

Jen and Dave have a meeting with her doctors tomorrow to discuss Hailey's rehab placement.  Jen and Dave are really pushing for outpatient rehab for Hailey after being discharged from the hospital.  The doctors are really pushing for inpatient rehab.  Having her do inpatient rehab is not an ideal situation for the family, so pray they can sway the doctors to see things their way tomorrow!

Hailey's immune system is pretty much gone and they've given her an infant roomate who we've overheard is there with the flu!  How the hospital can put someone with a compromised immune system with someone who is sick with the flu is insane!  Hopefully they can get Hailey either a private room or at least change her room mate to someone who isn't going to compromise Hailey's immune system more than it already is!

Lots of mail came to Hailey's room today and made her and her mom smile!  Love all the love and support everyone is sending them!  Such cute cards and gifts!  Thank you SO much to everyone.   I told Jen pretty soon the mailman is going to have to carry a bucket with him to deliver their mail :)

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