Sunday, April 3, 2011

April 3, 2011 7:46pm

Hailey has had a whiney clingy "grumpy old man" kinda day.  Completely understandable though!  Poor girl has been through the ringer!

She's doing good though!  Keeping her vitals stable, talking, and even moving all her limbs!  She just needs to gain some strength back to those movements! They keep putting her in the Physical therapy chair they brought for her (the carseat one).  It really helps her work her back muscles, and stomach and everything so they want her to spend some time in it each day.  Hailey hates the process of getting in it, but once she's in it she doesn't want to get out!

She's watching lots of movies and spending lots of cuddle time with mommy.

They've removed her NG line but have kept her feeding line in until she does a barium swallow test tomorrow.  They are also going to have a speech therapist come tomorrow to evaluate her as speech problems are common with this syndrome.

They will remove the central line tomorrow also and hopefully the Arterial line too.  They want to make sure they don't have to draw blood anymore before they get that removed.

Pretty soon she'll have no tubes at all hopefully!!

Still no talk on discharge or on where or how she'll do Physical therapy after she gets out of the ICU.  But things are moving along!

SO proud of you Hailey!

1 comment:

  1. This is wonderful news! I knew all the prayers and good thoughts would work to heal Hailey! I am so glad that she is feeling better, talking and moving! This is going to be a wonderful day!