A Blog about Hailey a 4 year old little girl who is battling Guillain Barre syndrome. Hospitalized for almost a month during which she was placed on a breathing machine, she is now in extensive rehabilitation to regain her strength after the syndrome temporarily completely paralyzed her.
Sunday, May 1, 2011
Our week in review
I was going to post this picture at the end of the entry, but it keeps putting it at the top!! This picture makes my heart so happy!! Hailey got a bike for her birthday! Her therapist thought it was a great idea and would be great therapy for her. She has actually started peddling herself! This is from a walk we took this past week with one of our neighbor friends! Good times!
Hailey had a great week! We had therapy Mon-Wed this week. Physical therapy was supposed to be in the pool on Tuesday, but we received a phone call that it would be "on land" instead because a light bulb over the pool burst and there was some glass in the pool. Hailey was a little disappointed (as was I! I am interested in watching and seeing what they'll be doing with her).
They've been working a lot on her fine motor skills. Coloring with smaller pieces of crayons to promote use of her pincher grasp instead of fisting the crayon. They are harping on this, however, I'm not 100% sure, but I don't even think she was using her pincher grasp before all this happened to color and write. If she was, it was only sometimes so she was still transitioning to this milestone. It won't hurt though to have them encourage it. They also were working with clothes pins to strengthen her fingers and playing with putty for the same purpose. The Easter Bunny brought Hailey some playdoh in her basket. She must have realized this would serve the same purpose!
After therapy one day this week we visited one of her preschool teachers. Hailey had so much fun playing with her younger son! They didn't know she was walking yet and Hailey loved showing it off up and down their hallway! It was a good time!
Other milestones this week: Hailey started back in dance class! She did fabulous! I am able to watch on the television in the lobby what's going on in the studio and Hailey did wonderfully! There is only a couple of things like skipping where Hailey can do it, she's just slower than the rest of her friends. It's the same with her running. She's started trying to run again. It's more of a fast walk, marching looking thing. The great thing is, Hailey doesn't care/realize she is any different right now than the rest of her friends and she isn't letting it hold her back. Saturday we had pictures for dance. She initiated races in the studio and of course everytime she would lose, but just kept saying "Darn! You win again! Let's race again!" I am so happy that she isn't taking it hard.
Hailey has also requested to start back at school. There isn't many classes left (school lets out mid May) and after speaking with her teacher, we have obliged. She is only able to go one of the two days she would normally go as we have a therapy scheduled on the second day. She has her long therapy that afternoon though so I'm going to keep an eye to make sure the day isn't too much for her with everything. She can fatigue easily right now. Her therapists have said that Hailey is really good letting you know when she is tired and needs a rest though. It feels good to be back to "normal" somewhat.
To top off the week, I've got both the boys who have pink eye!! Ack! We just had it go through the house in January...every single one of us got it. Luckily I've got plenty of eye drops left from that showing and we've started treatment. I pray Hailey doesn't get it (It's one of the viruses she tested positive for in the hospital, although her eyes weren't pink...carrier maybe?)! I'm just so paranoid about her catching any kind of cold right now, as innocent as they may be. It's going to happen sooner or later, I know, and I also know she'll be fine, but it still has my nerves in a tizzy!