March 30, 2011 10:07pm

Jen didn't respond to my texts asking how the rest of Hailey's day/night went, so I'm just gonna post more pics :P

Hailey's Plasmapheresis machine! Looks like something you'd see next to Frankenstein! 

All those tubes and wires carry her blood from her body, clean it out, and then put it back in her body.


Some balloons and just a few of the MANY stuffed animals Hailey has gotten.

The thing that made me the "best Aunt ever"

Can't wait to hear her doing this again...

Hailey Singing "Beat It"

:)

March 28, 2011 10:55pm

Hailey received another plasmapheresis treatment today. No changes otherwise. Hoping to see some improvement after 3 treatments now. *fingers crossed*

March 28, 2011 11:01am

They have turned Hailey's vent settings down again.  They have said her volumes arent high enough to take her off the vent and even if they were they need to wean her slowly so her lungs don't collapse. She's been on the ventilator a week and a half now and Jen and Dave just really want to hear her voice again.

The nurse practitioner has made a case for NOT doing the PICC line by saying the ones Hailey has now have been good and she thinks if they do need to do another IV they could get another vein so it isn't a neccessity right now.  Of course that could change, but they think they could do without it for now.

Hailey also moved 4 fingers on her hand this morning!  When asked to raise her arm she wasn't able to, but she did wiggle her fingers.

Another plasmapherisis treatment today at some point.

Please pray for some progress in the breathing area so we can get Hailey off this ventilator!

March 26, 2011 8:54am

No real changes for Hailey this morning.  They had to place yet another IV last night.  No plasmapheresis treatments this weekend, just the breathing treatments for the atlactasis.

Please pray that we start to see some kind of movement from Hailey's extremeties.  Let us know that this thing is starting to reverse itself and the treatments are working.

March 25, 2011 7:45pm

Hailey had a pretty good day! Treatment went well, her blood pressure didn't drop this time during treatment and her heartrate has been pretty normal all day.

This afternoon/evening has been a little bumpy. They turned Hailey and her O2 sats dropped and they had a hard time getting them to rebound. They had to turn up her ventilator settings again to deal with the drop in O2 sats. They've also talked about inserting a PIC line. Poor Hailey has been poked enough!

Pray for them to be able to not have to do a PIC line and for a stable night for Hailey. Hailey will not get treatments this weekend so hopefully she can rest!

March 25, 2011 1:02pm

2nd treatment went great and her lungs are sounding better too!

March 24, 2011 8:41pm

Hailey has had a stable day! They did the plasmapheresis today and Hailey's blood pressure dropped once and they had to pause treatment and push IV fluids.  They then were able to continue treatment and complete it. They believe Hailey has Atlectasis and not pneumonia.  It is similar to pneumonia except it moves around so each time they put Hailey on her left side it moves to her left side and when she's on her right the fluid and stuff is in her right side.

They have her on a machine that basically puts little puffs of air in her lungs, like a fake cough.  We hope along with the stronger antibiotic this will help get rid of the atlectasis.

They will take another blood sample in the morning to check her platelet levels and see if she can tolerate another treatment tomorrow.

Pray for Hailey's blood to replenish the platelets and for the antibiotics and treatments to work on her lungs!

March 24, 2011 1:32pm

Hailey's central line is in. Now we are waiting on the plasmapheresis machine. They will give Hailey a treatment today, another treatment tomorrow and then let her rest over the weekend.